CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

Walk for Epilepsy 2009

March 29, 2009

I am so happy to report that our family walked in the 3rd Annual National Walk for Epilepsy yesterday. It was raining, but not as cold as I had expected, so I am thankful for that. We got downtown in enough time to get our Starbucks and see some of the tents they had set up before the Walk. It was a great day! Our team raised $2,490! We had 24 people in total walk! Next year, I hope to double the money raised and the people walking with us! Kenzie did great, she rode in her stroller the entire walk. Last year Wayne had to carry her on his shoulders. She had so much fun with all the people there. Our team got a picture with Alan Faneca, from the New York Jets. He has had Epilepsy since he was 15. Here is a link for his story on the Epilepsy Foundation website:
http://www.epilepsyfoundation.org/epilepsyUSA/faneca.cfm
He is a true inspiration and a supper nice guy! After the walk we all went and had lunch. All in all it was a great day!! I will upload the photos as soon as I can!

Kenzie is doing ok. She had a total of 25 seizures yesterday, but I guess that was because she got up early and it was a long day. She is averaging about 15 seizures a day still. We have an appt with her Neuro on Monday the 6th. Her behavior has not been all that fun. She is moody and angry a lot lately. I think it has a lot to do with the meds. Another issue for the Neuro on the 6th.

The boys are doing well. Corey got on the baseball team he wanted to get on! He is so excited about that. I think he will have a GREAT season!! Ryan got on the team he wanted as well and is doing well! His flag football team is rocking! The are 2-0 now! So cool!

I will blog after Kenzie's appt, hopefully with so much more info!

2008 Walk For Epilepsy

March 15, 2009

I offically have a teenager! Corey turned 13 on Monday! WOW! He has baseball tryouts next Sunday, it was today, but got rained out. Ryan has started his practice for baseball and flag football! Crazy I know, but I am confident that we can handle (Ryan too) 2 sports at the same time!

Kenzie is doing good! She is still having atonic seizures and now is having myoclonic seizures. We are averaging about 10 a day between the 2 types of seizures. It honestly seems to be a pattern, this is how it all started last year. She started having atonic seizures in late January and started the myoclonic in February, March. Hopefully, with her being on different meds than last year and with us upping the meds gradually maybe we can stop the pattern, before we hit the tonic-clonics.

She will start her second session of therapeutic horse back riding this Thursday. She loves it! She is doing so well! Kenzie knows when we make the turn from the main road to the stables, she starts 'calling' her horse and smacking her leg! When Dixie comes out into the ring and the helper comes to bring her to Dixie she starts 'running' to her. It's really great to see her so excited about this. I thinks it's really helping her. She tries to communicate more with us, and makes a lot of little noises.

We went to her re-eval and she has been given a label. The label for her now is OHI, Other Health Impairment and MR, Mental Retard. It was really hard to hear MR. I know it doesn't change anything, she is the same little princess we all love, but for someone saying your child is MR, is a tough pill to swallow. According to the social worker at her school this will get her more services through the state and more options for schools too! I don't think she will go to our home school, I am hoping she will go to the same school she is at now. They already know her and love her, even the principal is under her spell! But, she will obviously be in a different classroom. We will be able to visit the schools with MR programs before we comment to anything. Although, that will not be til the end of the school year. I'm just a little nervous about the change for her.

March 28th is the 3rd annual National Walk for Epilepsy! I hope all of you will join us in the walk! Go to www.walkforepilepsy.org, search for Team New Hope! If you can't walk, please consider supporting us!

Epilepsy Facts:
Over 3 million Americans have Epilepsy
200,000 new cases are diagnosed each year
45,000 of children under the age of 15 are diagnosed with Epilepsy each year
In 70% of new cases no cause is apparent