July 17, 2008

WOW! I know it's been a while, but I have some exciting news! We have an appt with Johns Hopkins on July 29th! I can't believe how quick we are getting in! I can't wait to hear what they have to say about her. We also have since had an appt with her neuro at Children's. We have changed her dosage again with her meds. We will weekly increase her Lamictal and decrease her Depakene. She is currently on 3tabs (15mg) 2x daily and 6ml (250mg per 5ml) of Depakene a day. Next week, we lower the Depakene to 5ml and continue that pattern until she is off the Depakene. The Lamictal we increase her pm dose then the following week we increase both am and pm dose. I know it sounds confusing, but her doctor wrote all this down and I have it all on the calendar! She has her good days and her bad days with her seizure activity. She is still having anywhere from 8-14 a day. Which is good, but needs to be better!! So that is where we are right now with the meds and the doctors.

Kenzie has been doing really well with her speech therapist! I have seen some improvement with her trying to communicate. Her therapist has also taught me some things as well! It's been a really good experience for both of us! Kenzie also starts summer school on the 28th of this month. She will ride the bus to and from school. I just have to get her back on a school schedule! She has been sleeping a lot more lately, but I know that has a lot to do with her meds changing weekly. I have to say though it's really nice to sleep in!!

We took a trip to the beach for a couple of days, just to get away. Kenzie really liked playing in the sand, and she even played a little in the water! We all had a great time! I wish we could have stayed longer!! I will try and put some of our beach pictures on here soon!

Corey is playing summer basketball and loving it! He scored 2 baskets at his last game and had 3 steals! I think we are going to try and work it out for him to play in the winter! Ryan wrestles so it's gonna be stretch!

Ryan goes to wrestling camp next week, just in the evenings at South County High School. He is really looking forward to that. He also has football practice once a week, and Wayne is coaching football this year! The two of them couldn't be more excited! Just busy as always here at our house!