June 14, 2008

Summer is officially here at our house! Everyone is out of school and ready to live at the pool! Boys' are done with baseball (summer basketball will start next month as well as practice for football!) Corey is officially a 7th grader (if you can believe that!!!) and Ryan is now a 3rd grader! Where has the time gone!

Well, I think I spoke to soon! I always seem to do that! Kenzie has been having about 13-21 seizures a day since my last post! We had to increase her Lamictal to 1 1/2 tabs a day (15 mg a day) and I'm not sure if that is playing into this seizure increase or not. She has also been really sleepy the last few days. I'm sure the increase in seizure activity doesn't help. On Thursday she woke up at 8am then went back to sleep at 10am and slept til 12:30. She then wanted to go back to sleep around 5! All day she was really clingy and sleepy. She would have her burst of energy (during Doodlebops!) but crawl back into my lap (or Wayne's). I do plan on calling her neuro on Monday if this keeps up. I have started using the really cool website to track her seizures (I will put the link on her blog). The website asks for seizure detail and med info. Then you can print out the info and take it to her doctor. You can even email the report to your doctor if you want. The site also gives you a graph to show you increase in seizure activity and medication levels. It's really nice and helpful! I would recommend it!

Kenzie also had her first speech therapy appt on Tuesday. It went pretty good. She was having a bad day that day, very sleepy. Her speech therapist said there is a lot of hope for her to talk. She uses words appropriately (Kenzie does confuse yes and no!) and she interacts with you (or anyone that will listen for that matter!) Her speech therapist also said she too, does not see autism as a dx for her. Kenzie does have some autistic tendencies, but doesn't have autism. According to her developmental pediatrician at Children's, her neuro and now her speech therapist she doesn't have autism. I believe in my heart of hearts she doesn't have autism. Every time I entertain that thought, I have some one else tell me they don't believe she is autistic. Some days I wish she would get a dx (not just Epilepsy), other days, I just want to get through the day! Time will tell! God is really working on my patience! It is all in His time, not mine! I just keep praying for strength, wisdom, and His guidance! Without Him, I can do nothing, with Him I can do anything! I just pray that I keep this perspective. Don't get me wrong, I have my days, but God will not leave me, He is with me! Even when Kenzie is driving me crazy and I just feel like I can't do it anymore, God is with me and He won't leave me, I just have to keep reminding myself of this fact! Thanks for reading! I will post again after her geneticist appt on Tuesday!